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     There are many websites on the Internet with information about the many illnesses, diseases and disorders that limit the abilities of children and adults. The website links provided here are sources of information that can help you better understand them. Ability Network can answer your questions regarding our services for special needs and how we serve not only the individual with special needs but his or her family as well. Contact us online or call Ability Network at 866-483-3555.

FAMILY INFORMATION
     If you feel your infant or toddler may have delays, anyone can make a referral to Missouri's First Steps program by calling this toll-free number: 1-866-583-2392.

Early Intervention
First Steps Services
First Steps Eligibility Criteria
First Steps Funding/Federal Legislation
Individualized Family Service Plan (IFSP)
Prepare for an IFSP Meeting
Glossary of Terms Related to Disabilities

Assistive Technology

Assistive Technology for Infants and Toddlers
Assisting Families in Selecting and Using Assistive Technology
Switch Toys…Where to Begin
Playing with Switches
Computer Play with Young Children Birth through Three
Missouri Assistive Technology

Autism and other Related Disorders

Pervasive Developmental Disorder
Autism
Asperger Syndrome
Rett Syndrome
Fragile X
Hyperlexia
Childhood Disintegrative Disorder
Support Groups in Missouri
Early Intervention and Autism
Treating Echolalia
Additional Autism Resources

Cleft Lip and Palate

About Cleft Lip and Palate
Information for Parents

Feeding Issues

List of Terms for Cleft Lip and Palate

Cleft Lip and Palate Surgery

Syndromes Related to Cleft Lip and Palate

Speech and Language Development

Speech and Language Q & A for Parents

Cleft Lip and Palate Support Groups

Developmental Disability Resources

Disability is Natural
UMKC - Institute of Human Development
Center for Innovations in Special Education
MO Developmental Disability Resource Center
Family Village
Guide to Disability Resources on the Internet
Waisman Center
Alphabet Soup Dictionary of Acronyms

Early Intervention

Missouri First Steps
Parent's Guide: Accessing Programs for Infants, Toddlers, and Preschoolers With Disabilities

National Early Childhood Technical Assistance Center

Regulations for Part C of IDEA (Birth to Three Year Olds)

Zero to Three

Division of Early Childhood of CEC

International Society on Infant Studies

Birth to Three

Activities for Infants

On-Line Free Infant and Toddler Games

Hawaii Early Learning Profile

Baby Bumblebee…Early Intervention tools
Early Learning Pages
Child Find
A Professional’s Guide to Assisting Families in Creating Play for Children with Disabilities
The Pediatrician's Role in an IEP and/or an IFSP
Kids Ready for Learning
Kids Can Learn
Toy Characteristics
Toy Positioning Aids
How We Play…Birth through Two (A Guidebook for Parents and Early Intervention Professionals)
Lets Play…A Guide to Toys for Special Children
Developmental Milestones (with exceptions)
Developmental Milestones (broken down by months)
Developmental Checklist

Fetal Alcohol Syndrome

Fetal Alcohol Information
Intrauterine Exposure to Drugs and Alcohol: How Do the Children Fare?

National Organization on Fetal Alcohol Syndrome

Hearing Impairment


Deaf Education Options and Communication Choices
Oral Deaf Education
DeafEd Net

My Baby’s Hearing…Getting Started with Early Intervention

Early Hearing Detection and Intervention Program
Essential Guide to Hearing Loss
Cochlear Implants

Counseling Parents about Cochlear Implants
Hereditary Hearing Loss
Syndromes Associated with Hearing Loss

Newborn Infant Hearing Screening

Hand Speak

Deaf Culture and History
Central Auditory Processing Disorder

Lead Poisioning

Lead Poisoning and How It Affects the Brain and Behavior
Preventing Lead Exposure

Missouri Lead Poisoning Risk Assessment Tool
Lead Poisoning and Your Child

Legal and Law Resources

Individuals with Disabilities Education Act (IDEA)
Missouri Protection and Advocacy Services
Americans with Disabilities Act
IDEA Training Package
Missouri Parents Act
Missouri People First
Wrightslaw

Seizure Disorders

Epilepsy Foundation
The Epicentre…Frequently Asked Questions

Short Course in Epilepsy

Febrile Seizures…What Every Parent Should Know
West Syndrome/Infantile Spasms
Lennox-Gastaut syndrome

Rasmussen's syndrome

Tuberous Sclerosis

Dravet's Syndrome (severe Myoclonic Epilepsy in infancy)

Juvenile Absence Epilepsy

Temporal Lobe Epilepsy
Reflex Epilepsy
Ketogenic Diet

Special Education

Office of Special Education and Rehabilitative Services (OSEP)
Special Education Resources on the Internet
Council for Exceptional Children
Circle of Inclusion
Center for Innovations in Education
National Information Center for Children and Youth with Disabilities (NICHCY)
Federal Resource Center for Special Education

Assistance to Parents of Children with Disabilities

Information and Resources for Parents
American Council on Rural Special Education
Office of Special Education Technical Assistance and Dissemination Network

State of Missouri websites

Missouri Developmental Disabilities Resource Center
UMKC Institute for Human Development
Missouri Department of Mental Health
Missouri Department of Elementary and Secondary Education
Missouri Department of Health
Governor's Council on Disabilities
Missouri Department of Mental Health Library
Missouri Government Telephone Directory
Missouri State Resources for Children with Disabilities
Missouri Head Injury Council
Missouri Child Abuse and Neglect Hotline and Information
Missouri Legislature Lookup

Visual Impairments

Infants and Toddlers with Visual Impairments (online manual in PDF format)
Creating Educational Toys and Activities for Children who are Blind or VI
A Cheat Sheet for New Teachers of the VI Working with Infants
Almost 100 Motor Activities for Infants and Toddlers with VI
Orientation and Mobility for Infants and Beyond
A Guide for Parents of Infants and Young Children with Visual Impairments
Teaching Children Who Are Blind or Visually Impaired (on-line manual in PDF format)
MoSPIN

Toy Ideas for Blind Infants, Toddlers and Preschoolers
Blind Babies Foundation
Home Vision Screen Distance Vision Test for Younger Children

Characteristics of Cortical Vision Impairment Checklist
Developing Visual Skills for Children who Face Cortical Visual Impairments
Implications for Early Intervention Services to Infants who Are Deaf-Blind and Their Families
Tactile Signing
Tactile Learning Strategies for Children who are Deaf-Blind

Bibliography on Language Acquisition and Blind Children
Occupational Therapy for Young Children with Visual Impairments and Additional Disabilities
Gross Motor Development in Infants with Multiple Disabilities
Happy Shoes
Assistive Products
American Printing House for the Blind
Pre-Braille Experiences for Infants and Toddlers

Positive Behavior Support

Conducting a Functional Behavior Assessment
All About Positive Reinforcement
Including Children with Challenging Behaviors in child Care Settings
Headbanging…Why it Happens and What to do About It
Getting Behavior in Shape at Home
Preventative Practices in the Home for Children with Behavior Problems…Information for Families

Printable Behavior Forms

Cerebral Palsy

Newborns and Infants with Cerebral Palsy
Tutorial for Families

Motor and Language Skills

Conventional and Alternative Treatments
Hippotherapy
CP and Prematurity

Cultural Awareness and Diversity

Providers Guide to Quality and Culture
Appreciating Diversity in Early Childhood Settings
101 Tools for Tolerance
Test Yourself for Hidden Bias

Early Childhood Research Institute on Culturally and Linguistically Appropriate Services

A Cultural Diversity Guide for Health Professionals

El Día de los Niños/El Día de los Libros…a Celebration of Childhood and Bilingual Literacy
Working with Spanish-English Interpreters and Translators

Down Syndrome

Down Syndrome Association of Greater St. Louis
Down Syndrome: For New Parents:
Down Syndrome Health Issues
Facts about Down Syndrome
National Down Syndrome Society

National Association for Down Syndrome

Down Syndrome and Learning Styles

Down Syndrome Support Group in Missouri

Logan's Link

Growth Charts for Children with Down Syndrome

Preschool and the Child with Down Syndrome
Motor Development and Down Syndrome

Feeding/Oral Motor and Down Syndrome
Oral Motor Myths and Down Syndrome
Language Development and Down Syndrome

Total Communication Option and Down Syndrome

Hydrocephalus/Spina Bifida

Hydrocephalus Association
Hydrocephalus Basics and Treatment
Children with Spina Bifida…A Resource Page for Parents
Arnold Chiari Malformation
Syringomyelia
Dandy-Walker Syndrome
Agenesis of Corpus Callosum

Occupational Therapy and Spina Bifida
Occupational Therapy and Hydrocephalus

Prematurity

The Premature Page
Preemie Child: An Email Support Group

An Introduction to Extremely Premature Babies

Will My Baby Catch Up?

Parents of Premature Babies, Inc.

A Preemie Primer…A Column Sharing Insight, Tips, and Suggestions for Friends and Family Touched by a Preemie
Understanding Preemie Parents

Helping Parents Cope With a High-Risk Birth: Terror, Grief, Impotence, and Anger

How to Touch a Preemie—A Beginner’s Guide to Overstimulation

Prematurity and Feeding Issues

Feeding the Very Low Birth Weight Infant

Retinopathy of Prematurity
Apnea and Bradycardia of Prematurity
Intraventricular Hemorrage
Apnea of Prematurity

Sensory-Motor

Sensory Processing Disorder
Sensory Integration Network

Sensory Integrative Dysfunction in the Young Child
Sensory Materials
Tactile Defensiveness

Tactile Defensiveness Activities

Gross Motor Development in Infants with Multiple Disabilities

Motor Skills Milestones

Hand Play: Ideas for Parents
Child Positioning Aids
The Importance of Tummy Time for Infants

Fine Motor Activities

Assistive Technology

Reflexes in Infants
Fine and Gross Motor Skills
Yoga for the Special Child
American Physical Therapy Association
American Occupational Therapy Association

State (SICC) and Local Interagency Coordinating Councils (LICC)

Missouri SICC Membership
Roles and Responsibilities of the SICC

Speech and Language

Apraxia - Kids
Speech and Language Disorders
Design to Learn (Tangible Symbol Systems)
Do2Learn
Internet Education and Therapy Games to Enhance
Feeding and Swallowing Resources
Communication…Recorded Message Devices
Augmentative and Alternate Communication
The Milestones of Speech and Language (slide show)
American Speech and Hearing Association
Missouri Speech and Hearing Association

Misc Syndromes and Conditions

Aicardi Syndrome
Angelman Syndrome

Apnea
Arthrogryposis
CHARGE Syndrome

Congental Heart Defects
Cornelia de Lange
Cri du Chat Syndrome
CMV
Dravet Syndrome
DiGeorge Syndrome
Dubowitz Syndrome
Duchenne Muscular Dystrophy
Encephalocele
Failure to Thrive
Fragile X
Hirschsprung Disease
Glaucoma and Children
Goldenhar Syndrome
Hurler Syndrome
Hunter Syndrome
Jeune Syndrome
Lissencephaly
Long QT Syndrome
Microcephaly
Mucopolysaccharidosis
Myelin Disorders

Noonan Syndrome

Osteogenesis Imperfecta

PKU
Pierre Robin
Porencephaly
Prader-Willi Syndrome
The Sarah Jane Smith Story
San Filippo Syndrome

Shaken Baby Syndrome
Spinal Muscular Atrophy
Tay-Sachs Disease
Torticollis
Treacher Collins
Trisomy 18 (Edwards Syndrome)
Tuberous Schlerosis
Turner Syndrome
VATER Association
Williams Syndrome

Indexes of Syndromes and Disorders

Chromosome Deletion Syndromes
Family Village Library
Karolinska Institutet's Alphabetical List of Specific Diseases and Disorders
National Organization of Rare Disorders
Genetic and Rare Conditions Site
Directory of Online Genetic Syndrome Support Groups
Office of Rare Diseases

March of Dimes
National Institute of Health

Leslie's Favorite Sites

Ability Network
284 Merchant Street
Ste. Genevieve, MO 63670
Toll Free - 1-866-483-3555
Phone - 1573-883-8181, Fax - 1-573-883-8182

 

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